I first started experiencing symptoms of Cushing’s Disease at the age of 16. I am now 36, and for the past 20 years I have continued to experience the aftermath of Cushing’s and the treatments I have undergone. I would like to say that Cushing’s has not changed me, but that would be untruthful. While Cushing’s does not define me, it is a big part of who I am and has shaped the last 20 years of my life, for better or worse.
It was like finding a needle in a haystack. It was Friday, June 26, 2015, one week after I was discharged from Brigham and Women’s Hospital where I had brain surgery to remove a pituitary tumor. My parents and I were back at the hospital to hear the outcome. I was very optimistic that day. I knew it was a success; it had to be. I hadn’t endured a brain surgery and three days of blood tests for nothing. [Read more…]