The happiest day of my life should have been the day I got married or the birth of my son. But for me, it was June 12, … Read More
I first started experiencing symptoms of Cushing’s Disease at the age of 16. I am now 36, and for the past 20 years I have continued to experience the aftermath of Cushing’s and the treatments I have undergone. I would like to say that Cushing’s has not changed me, but that would be untruthful. While Cushing’s does not define me, it is a big part of who I am and has shaped the last 20 years of my life, for better or worse.
It was like finding a needle in a haystack. It was Friday, June 26, 2015, one week after I was discharged from Brigham and Women’s Hospital where I had brain surgery to remove a pituitary tumor. My parents and I were back at the hospital to hear the outcome. I was very optimistic that day. I knew it was a success; it had to be. I hadn’t endured a brain surgery and three days of blood tests for nothing. [Read more…]
My Cushing’s story started long before I realized it was being written. It is hard to say exactly when I exhibited my first symptom, but looking back at pictures, I began displaying a rounded “Cushing’s face” during my undergraduate studies in the late 1990s. I began dealing with minor anxiety at that time, but that didn’t seem too abnormal given my busy and intense schedule.
As I moved on to graduate school in the fall of 1999, I began having some skin issues, again nothing too out of the ordinary. In the fall of 2000, I became sick and unable to eat, which eventually was diagnosed as a failing gallbladder, which was removed at the end of that year. Although it’s unclear whether there is a connection between Cushing’s and my gallbladder issues, that was the first of many significant health issues I encountered over the next 13 years.