about Cushing's Disease

About the Conley Cushing's Disease Fund

You are not alone. Read about Marie Conley's Journey as she navigates the medical world and climbs up bean stalks

You Are Not Alone

The Conley Cushing’s Disease Fund (Kick Cushing’s) is dedicated to serving the patients and families of Cushing’s Disease and provides a number of services to the community by being:

  • A representative for patient organization for the Pennsylvania Rare Disease Advisory Council, signed into law in July 2018
  • A member of Life Sciences Pennsylvania
  • A volunteer for the PA Rare Disease Advocacy Network
  • A member of Global Genes RARE Foundation Alliance

Medical Professional Awareness Opportunities

The Conley Cushing’s Fund underwrites opportunities for medical residents and professionals to learn more about Cushing’s Disease through panel discussions and lunch and learn sessions.

Annual Kick Cushing’s to the Curb Reception

The Fund holds an annual event in November at the Hershey Country Club. Thanks to the generosity of hundreds of sponsors and donors, the Fund raises awareness and support to further the mission of the Conley Cushing’s Disease Fund, fiscal sponsor TFEC.

Cushing’s Disease Support Group for Patients and Family Members

The Fund is always happy to welcome any Cushing’s patient no matter where they are on their medical journey. We meet several times a year and have become a strong local resource for one another. Patients are from Pennsylvania, New Jersey, New York, Maryland, and Washington DC and are treated at hospitals throughout the country.  For more information or to join us, contact Marie Conley.

This Cushing’s support group means those of us living with this rare disease are no longer alone. At times it can feel as if the medical community doesn’t get us, our families and friends don’t get us, our bosses and coworkers don’t get us. But with this group we can laugh, cry and don’t have to pretend that everything is fine. They all truly GET IT! – Fabiana, Cushing’s patient

 

Download our brochure for information on budget and the Fund.

fund-explanations

For more information, or to join our efforts, contact Marie Conley at marie.conley@live.com

Marie is not defined by Cushing’s. She is inspired by it to help others – and to leave a legacy of hope.