Conley Cushing’s Disease Fund

Dedicated to serving the patients and families of Cushing’s Disease and assisting medical professionals in early diagnosis.

The Conley Cushing's Disease Fund was established on July 17, 2014 and is fiscally sponsored by The Foundation for Enhancing Communities. Funds raised will be used in part to create awareness and advocacy for Cushing's Disease.

Conley Cushing’s Disease Fund

About Marie Conley

After more than two years of symptoms that didn’t seem connected (including four bouts of bronchitis, pneumonia, strep, shingles, a fractured hip, a “hump” on my back between my shoulder blades, a mysterious umbilical hernia and foot problem as well unexplained weight gain of over 70 pounds in less than 15 months), I finally had an answer to what was causing my body to go into a downward spiral. I had seen 10 different specialists and had hundreds of tests. Now even though the diagnosis was devastating, at least we had a name for it.

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Cushing's Patient Stories

Cushing's Patient

Jaime's Story

What I learned early on from patients' experiences with Cushing’s disease is that it often follows an unpredictable path and leaves a person in an immediate reaction response, unaware of the next curveball it might throw their way. Since Cushing’s syndrome is a rare disease, you are left with many unanswered questions and finding the correct treatment becomes a stressful job.

Cushing's Patient

Alyssa’s Story

Most of my Cushing’s journey has circled around important milestones in my life. I guess that’s what happens when you start to get sick during your transition into college. This was the time I was supposed to be learning, growing, becoming independent and finding myself. In a way, I suppose all of these things were still a part of my college experience, however, I also had to balance regular doctor’s visits and 24-hour urine samplings all while starting a new life in a new city on a college campus that was 6 hours away from home.

Cushing's Patient

Jake’s Story

My Cushing’s story started long before I realized it was being written. It is hard to say exactly when I exhibited my first symptom, but looking back at pictures, I began displaying a rounded “Cushing’s face” during my undergraduate studies in the late 1990s. I began dealing with minor anxiety at that time, but that didn’t seem too abnormal given my busy and intense schedule.

Understanding Cushing's: What is Cortisol?

Hello and welcome to this short series of posts on Cushing's Syndrome/Disease! The series is divided into five posts, each with its own topic. So without further ado, let's jump right in.CortisolBefore discussing Cushing's, we must first discuss cortisol. Cortisol is a glucocorticoid (steroid) hormone which plays an important role in glucose and fat metabolism...
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